I’m on top of the world

I think I was officially discharged yesterday. I got to go home. My clinic visit with the lead researcher Dr. Maloney was an emotional, joy filled experience. I am on cloud 9 and I can't stop thinking about how fortunate I am in so many ways. My journey into this trial and through it has been miraculous. I am not a bible thumping person in any way, but I can say I have seen God's hand at work during this and it has been awe inspiring. My doctors also bring me to tears. I'm not sick. The official time from treatment to my all-clear no cancer scan was 4 weeks.

Can you see any cancer in this photo? Neither can I! Getting a photo with these guys was almost a miracle in itself. Dr. Maloney is WAY too humble, and the others are just camera shy. Except me, I'm too happy to care.
Can you see any cancer in this photo? Neither can I! Getting a photo with these guys was almost a miracle in itself. Dr. Maloney is WAY too humble, and the others are just camera shy. Except me, I'm too happy to care.

A few things about CAR-T. T-cell therapy, CART19. This is NOT chemo or a drug. I guess it would be classified as immunotherapy. What happened was: 1) I had blood taken and t-cells from my own immune system seperated out. 2) My t-cells were genetically modified in a lab to attack cancer cells. They also attack the good immune cells, because what I have is a cancer of the immune system, lymphoma. 3) The new t-cells were given back to me. They multiplied on their own and wiped out any trace of cancer. This isn't perfect, I'm missing part of my immune system. However, some chemo drugs also have similar side effects.

Here's the thing. I may have been lucky enough to get into this, but it's NOT about me. This treatment is going to change the face of cancer. I can't stress that enough. When I was diagnosed, there was no "cure." That may be the official stance since this hasn't passed the test of time yet, YET. The face of CAR-T immunotherapy is changing and growing so rapidly. Right now, it's been used on blood cancers and a few others but the trials for solid tumor cancers are starting now if they haven't already. I pray that my participation moves this one more step forward to other forms of cancer.

I am optimistic, but only because I have every reason to be. I'm not a pollyanna by nature. I wish I could shout from the highest mountains for everyone how exciting this is for future patients facing cancer.

Please email questions to me personally, or find me on Facebook. I don't know all there is about CAR-T. Guess what, the doctors don't either. I will answer what I can or try to find out. I will be continuing my follow up with the same team. The only downside to my day yesterday was trying to deal locally to find a doctor who will work with Dr. Maloney to monitor my labs, etc. I'm trying not to take it personally.

Also, I apologize for the disorganization of the blog, blogging isn't my strong suit!

3 thoughts on “I’m on top of the world

  1. G

    You look fabulous! Thank you for the blog - terrific attitude. I wish you the best of luck with your treatment - here's hoping you have put it behind you now. From what I have read CAR-T does seem to be producing amazing results. Let's hope your experience can become the norm.

    Reply
  2. Dennis

    You have every right to shout all you want! You're representing those in the future that will benefit from the people who care/gifted in working and dedicating those talents to such an awesome cause! Congrats and stay healthy!

    Reply

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