It seems like I have so much going on and yet it’s almost embarrassingly easy. The clinic was running on a skeleton crew today for the holiday, my research kit was misplaced. One diligent tech would not let it go, when everyone else–including me–was going to give up. I think she literally questioned every single person in the lab and finally found the paperwork for my research kit blood work. I’m glad, and yet I wonder how many T-cells they just took out in that extra 5 vials, 2 jumbo size.
I met another car-t patient today and we talked for almost 2 hours. When I say met, I mean I had a gut feeling, chased them to the elevator and asked if they were also a car-t patient. YES! When they started speaking tech to me, including nearly the exact same diagnosis I was beyond excited. It was very, very exciting for me to compare notes and experiences so far.
This video linked below has been brought to my attention by 2 different people, and I am honestly thrilled that the word “cure” is beginning to be used more by doctors. When I was diagnosed years ago, I was told this was incurable. A year later, I remember nearly whispering to my oncologist “they say they can cure this at MD Anderson…” The word cure is used very sparingly when it comes to cancer. We really are at the edge of an entire new era of treatment. It is encouraging to hear the doctor in this video say cure as opposed to turning cancer into a chronic or manageable condition. That isn’t terrible, clearly it beats many treatment options even now, but I prefer CURE. This isn’t just for blood cancers, they’re talking about many types.