I am CAR-T19

Random rant

Random rant

I hesitate to say I’m having a bad day, but I am crabby. Not about anything going on with me.

This morning I learned of a loss of a young woman and it’s breaking my heart. I wish I could do something or anything to ease the grief of her family. I’m in a bit of a mood, and then I went down a rabbit hole that leads me to the following.

Anyone who gets diagnosed with cancer is going to meet a lot of new people. It’s pretty much impossible to avoid. Some casual acquaintances wind up being extremely close and invaluable. Some “close” friends and family don’t know how to deal with it and drift away. Then there are some people like the following jackass I’ll name “JJ” to protect his privacy. JJ doesn’t have much experience, but that’s irrelevant. He knows¬†people. His oncologist is practically his BFF, and he’s on speed dial and email ¬†24/7 with him. No matter what you’re doing, chances are it’s wrong and JJ is going to tell you about it. He’s an expert. It leaves me scratching my head how JJ hasn’t single handedly eradicated cancer because he’s just that good. He’s going to tell you what treatment you should be having and where. The jackass I’m referring to is single-handedly the reason I was hesitant to even share my own experience with this trial. He’s also the reason that I’m not going to get into a lot of specifics. Luckily for him, he’s already an expert in everything to do with my treatment, not that he’s having it or anything else. I avoid JJ’s as much as possible, and I encourage anyone else to do the same. Arm chair quarterback internet experts like this are in no way qualified, even with all their connections.

Leave a Reply

Your email address will not be published. Required fields are marked *